Bob and I are on our morning walk, our ears tuned in to the new warblers that have come into the area this week, our eyes honed to catch glimpses of them along the side of the dirt road. This has become a deeply pleasurable ritual for us: the girls get their own breakfasts and start their lessons while we take an hour to amble through the state land before starting the day. Where we used to only be able to take walks together with children in tow, now all we need to do is carry a cell phone.
And it rings. It’s Ula.
“Umm…Aren’t we done with school now?”
“What do you mean, aren’t we done?”
“We were supposed to be done by lambing season. And we did school all through lambing season and I couldn’t go to the farm all day. I could only go in the afternoons.”
“I never said we’d be done by lambing season.”
“We’re supposed to be done by lambing season. We’re always done by lambing season.”
“We’ll talk about this when I get home.”
Truth is, Saoirse was done with school by lambing season. Saoirse has an encyclopedic memory. She masters her lessons with ease, takes online classes and absorbs everything the teacher presents. Ula, who has cerebral visual impairment, faces a different educational reality. Outside of the life challenges she faces when coping with crowds or new environments, the basic act of learning is a huge hurdle. Her visual memory is poor. While she remembers spoken dialog with accuracy that would be the envy of any trial lawyer, when it comes to visual material, she can have facts mastered one day, then completely forget them the next. Her processing speed is extremely low. What goes in takes a long time to be absorbed, and then can be quickly forgotten. Reading is physically painful. Then add to the mix the high expectations of an otherwise bright and articulate child — one who has developed an awareness of her mind; who is intelligent enough to know she is struggling with things that come easily to her peers; and you have a landmark symptom of a learning disability: self loathing. Self-loathing beats up the brain, filling with it with self doubt. When it rears its beastly head, learning becomes almost impossible. When the brain is functioning well and Ula feels good, and learning happen. The web of axon terminals and dendrites surrounding brain cells grows thick and complex, enabling connections to be made faster. But when negative emotions go into the mix, the development stops again. The web shrivels and withers. The connections grow weaker. Un-learning begins.*
And so, learning for her looks different. We spend a lot of time on vision therapy, to help her brain and eyes learn to work together. And when it comes to lessons, we go slower. We take more breaks. We work fewer hours. The aim is to keep her rested, cheerful, and engaged.
And as Bob and I walk home, and I consider the debate I face with her, I have to allow that she’s worked miracles lately. In the past, we’ve had doctors tell us she might not learn to read. She might not be able to learn math. This year, in spite of her joy in her special ed reading class that she took one hour each day at school, she dropped the class, claiming that she needed more time to read independently. Regular print books are still an enormous challenge, but she’ll stay up late at night with graphic novels and large-print books. Her appetite for recorded books is insatiable. And with math, in the past two weeks, something new has clicked. She has started to learn her multiplication facts, she is grasping the concept of making change. She is probably one or two years behind her peers, but she is making progress. And she and I are both learning that being “slow,” doesn’t mean “unintelligent.”
But these improvements don’t happen on their own. They are the result of daily work. Because if the brain doesn’t get practice, then the axons and dendrites can’t grow and continue to form their complex web. Summer vacation has its hazards.
But then there’s the farm. Ula’s super hero is Kate, our herd manager. Like Kate, Ula watches the animals with a level of attention neither her father nor I can sustain. She loves nothing more than to trail after her, sponging up everything she can, helping in any way possible. She tunes in to the animals’ health. She takes pleasure in watching them. Like my brother (a marine biologist), she is fascinated by the ponds and streams at Sap Bush Hollow. If allowed, she’d collect every sample of aquatic life on the farm to observe and tend.
Knowing how important all this is to her, I’ve let her go to the farm nearly every afternoon. But the warblers are here, the leaves are on the trees, and for Ula, a little afternoon time isn’t enough. And as Bob and I near the end of our walk home, I consider something else: My own hang-ups. So many parents I know tell stories of how exceptionally bright their children are — How they excel in school, how they need to find more intellectual challenges for their precocious children. In my bitter and sarcastic moments, I mock them as being victims of gifted-child-consumerism. But in the darker corners of my mind, there are days when I feel like I’ve done something wrong….Perhaps I haven’t gotten my child what she needs to succeed, or I haven’t worked hard enough with her, or we aren’t dedicated enough to her learning. From an objective distance, I can understand that Ula is moving forward beautifully, defying what was thought impossible. But my own insecurities harp that we cannot rest until she’s all caught up.
Then my mind lands on that operative word: rest. For Ula, we’ve learned rest is imperative to make learning happen. Of course she wants to succeed. She will push herself. But if her eyes are tired, she only makes more and more mistakes with her school work. There are times I physically intervene, ordering her away from her papers, assuring her that if she will just go play for a while, the work will be easier later. Those are short rests in the face of continued attention to learning. But what about long rests? Don’t they have a place, too, in refreshing the joy of academics? Is the price of slipping backward worth the renewed interest it can spark?
She isn’t the only one who needs rest, I realize. Because while Ula’s education is important, her learning issues are not my issues. I cannot make them my identity. I have things that matter to me, too. This family farm needs attention. There are lots of things happening, lots of changes to consider, and lots of invention is in order to keep things viable, interesting and fresh. This farm and my creative work are as much a part of me as my children’s needs. They represent my own personal dreams. I push them aside often to school my kids, but there are times, like now, with growing markets and new business ideas, when I simply don’t want to relegate my dreams to the fringe hours. And if I can give them more conscious attention, I rest my teaching mind, too. I allow my energy to rejuvenate so that I can return to this child’s development in a few months. Meanwhile, there are other lessons she will be learning from me: that raising a family does not mean sacrificing all the things that matter to us personally.
But that means being comfortable with the idea of Ula being “behind,” in the traditional academic sense. It means letting the straight-A student inside me wear the dunce cap for the summer. It means trusting that Ula has had a good taste of the joys of being able to read and do math; that, given the opportunity to blend them in with the farm life she craves, she’ll be able to come back to them, even if it isn’t with the same speed and facility as her peers. And most importantly, she’ll have time off to relish learning in the areas where she excels. And so will I.
*For those of you who are newer to this blog, I wrote more about Ula’s learning issues and the limited lessons I’ve learned about neuroplasticity a few years ago.
Jane
My 32 year old son did not learn to read until he was 12. Today he is a voracious reader, and has a Masters in Library Science. When he was a non reader, we read to him every day from books that gave him a thirst for more. When he was ready, he read. The whole experience has changed my views on how children learn to read, and how our education system makes children believe they are less than, if they fail to meet our arbitrary standards. Thankfully we unschooled him and his 5 siblings, so he was allowed to develop at his own pace. My belief is children blossom when accepted for who they are, and when allowed to follow their passion. Thank you for your blog. I always love reading about your farm, and your book Radical Homemaker was one of my favourites.
Tatiana
Thanks for sharing, just wondering how does testing work with unschooling when the state bugs you for it? We tried various ways just never unschooling except when they were young. Thanks.
Barbara
As the Grammy of a 5 year old grandson with CP who is also non verbal, I have watched my daughter go through your same thought process. I have seen him have a break from school and go back to it with a different attitude. My daughter loves to cook and bake and the other day she sent me a video of him helping her. The smile on his face was amazing. Sometimes he needs a different approach to learning. I have found over the years of being his Grammy that every small step he takes (he only started walking this past year) is a miracle. Children with special needs are truly a blessing. I hope you and Ula both enjoy your break:)
T Phillips
Years ago, I remember an article about the actress Tracy Gold, who had a form of dyslexia. Unable to absorb either predominantly auditory or visual information, her parents found that if they recorded her assignments, and she listened AS SHE READ, she could remember the information. As a slower learner myself, I was fascinated by this. Later, I married my husband, who has an adopted son with minor alcohol fetal syndrome. Although of average intelligence, C’s brain cannot process information like a “normal” brain, his short term memory is very poor, and he has no ability to accurately judge his own performance. Imagine the frustration of dealing with a kid who thinks he is doing just fine, but really is getting nowhere fast. His great gift was music, but after being berated by the band teacher for forgetting to bring his music to class again, he spent the rest of the day sitting in the instrument closet and gave it up. He spent some time as a meth addict, and is now loving life as a short order cook. Your path, as was my husband’s, as a top student probably does not reflect that average person, and yet the vast majority of us have found ways to cope and make a life. I think Ula will do just fine.
Tatiana
You and your family are great, all our kids were unique, every gifted person has inabilities just as those that may seem unique in needs, it just presents differently. Clearly you are doing a bang up job because Ula is just loveable and brilliant, uniqueness is a blessings, it helps the world realize and keep in perspective the things that matter most, the journey and those in it, with joy of course. So advice, my dh always said, it time, its enough, time for summer fun. You just find summer fun ways that may cover what you need, but make it fun and point out the fun. What good is life if its all work and no play, I got that all the time, face it many of us are worker bees or Martha’s and others are Mary’s the embracing kind of lovely people. Both are important we just need to keep in mind how to meet to make life great and to be content with ourselves, make sure we love ourselves for it too. So smile God loves us all, and if Ula can do it all in her head and by means of audio well a big wow to her as I have to be visual, audio and tactile so I end up being this crazy absorber that hyper focuses that is a jack of all trades and master of none, I make a good teacher or editor but not great at any particular thing, it took me 50 years to get over that because the world lies to us about what we should be. We all just need to hear the voice of God calling out our vocation and how it fits into our lives so we can love life and what is in it, the rest just has to fit in not the other way around. As always prayers, hope and blessings!
Rebecca L
Ula is very lucky to have you as her mum to guide her through her challenges.
You made me laugh about ‘gifted-child-consumerism’! I never thought of it that way.
So glad your blogging season is back.
Rebecca L
Also, I love the illustration accompanying this article. A really good likeness of you! Lovely, sensitive use of colour around the eyes.
Sarah Pendergraph
Having homeschooled three children in the high pressure atmosphere of suburban New Jersey, I can identify with you. My middle son has a severe mood disorder and learning does not come easy. He is bright and curious but academics do not interest him. Mostly because it is so much work. Frustration sends him into rages, so we have worked hard to find a balance. He didn’t learn to read until he was 10 and math is a particular bugaboo. Now 18, we just want him to pass the GED. He is good with his hands, always excelled at spatial manipulation and is super strong. We are trying to help him find a career that doesn’t require a college degree. We have recently moved to SW Virginia to get out of NJ and the constant questions about what college our kids will go to. I am an academically minded person and loved college, but I also need to support my children where they are at. (Btw, our favorite book to read to our son when he was little was Leo the Late Bloomer. We wanted to remind him and us that he would get there eventually. ) Ula is lucky to have you as her mom.
Anita
I personally know Ula is a brilliant child. My talks with her are very enjoyable. She is an analytical child, taking into account different possibilities to solve problems. She is wise beyond her years. So you can brag about your two exceptional children.
I had difficulty reading from 1st grade, comprehending, spelling, in forth grade I stuttered. I have difficulty processing incoming information when people talk fast. Its like my ears shut down. When I am nervous or do something new, I become frozen. I do not write in a conventional way.
I have been tested. There is something wrong with my brain. I would never be able to write a scholarly work. However, I’m good at math, a little rusty now. I am very creative and a great problem solver. I now love to read but what I like. I also have 2 Masters degrees and you can’t get a C grade in those programs. So how did that happen? When I was accepted for a bachelor’s program, I had to take remedial classes. The first one I chose was study skills. I’ve applied those skills throughout my college career and life. I had to work 3 times harder to get the info to stick in my head but I made it.
I found out recently that I had a stroke in utero. The neurologist said since I wasn’t visually effected on the left side, I must be ok. Sorry, I don’t agree. I think I was very effected. I was also deeply effected by stress and trauma. However, yes we can train our brains to make new neuropathways. Learning is the only way to do that. It doesn’t matter how.
Love to you Ula and Shannon